"Changing the quality of life for patients with ME/CFS"
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Coalition 4 ME/CFS ICD Proposal
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On July 15th 2011, the Coalition 4 ME/CFS submitted a proposal to the ICD-9-CM Coordination and Maintenance Committee (C&M) to restore CFS to the nervous system diseases G93.3 code in the ICD-10 Clinical Modification (ICD-10-CM).
This action was taken following the September 2004, August 2005 and May 2011 recommendations of the federally-appointed Chronic Fatigue Syndrome Advisory Committee (CFSAC),
On September 14, the Coalition 4 ME/CFS presented a proposal to the National Center for Health Statistics (NCHS) to reclassify chronic fatigue syndrome (CFS) as a neurological disease in the United States International Classification of Diseases-10-CM (ICD-10-CM) and International Classification of Diseases-9-CM (ICD-9-CM).
This proposal is referred to as “Option 1” and was submitted for expedited review. Benign myalgic encephalomyelitis (ME) and post viral fatigue syndrome (PVFS) are already in the G93.3 code. The coalition’s recommendation is to remove “benign” or put it in parenthesis after “myalgic encephalomyelitis,” as there is nothing benign about this disease.
CFSAC Historic ICD-10 Recommendation
Coalition Proposal to Reclassify CFS
- CFSAC considers CFS to be a multi-system disease and rejects any proposals to classify CFS as a psychiatric condition in US disease classification systems.
- CFSAC opposes the current classification of CFS in Chapter 18 of ICD-10-CM under R53.82: Chronic fatigue, unspecified > Chronic fatigue syndrome NOS.
- CFSAC continues to recommend that CFS should be classified in ICD-10-CM in Chapter 6 under “diseases of the nervous system” at G93.3, in line with ICD-10 (WHO) and ICD-10-CA (the Canadian Clinical Modification), and in accordance with the Committee’s recommendations of August 2005 and May 2011.
- CFSAC does not support the National Center for Health Statistics’ Option 2 and recommends that CFS remain in the same code and same subcode as myalgic encephalomyelitis because CFS includes both viral and non-viral triggers.
- CFSAC recommends that an ‘Excludes1’ be added to G93.3 for chronic fatigue (R53.82) and neurasthenia (F48.8). CFSAC recommends that these changes be made in ICD-10-CM prior to its rollout in 2013.
